The little seven year old’s rare condition should have killed her – but it hasn’t.
Heartwarming: Meet The Little Girl Whose Heart Pops Outside Her Body When She Laughs
For this little girl, giggling is an experience totally different to that which most people have; one that sees her heart literally pop out of her chest wall.
A video of this incredible phenomenon has been posted online. The girl is believed to be Virsaviya Borun, a seven-year-old from Russia who is now living in Florida.
Virsaviya embraces her own heart. Source: yourcaring.com
Just a normal little girl
Virsaviya suffers from a rare congenital condition called Pentalogy of Cantrell.
Kidspot covered her story back in 2015. She is a normal little girl in so many ways – she loves Beyonce, ponies and doing the splits but her heart and her other organs are outside her body.
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Her mum Dari spoke at the time about moving to the US where the climate is warmer, to help her daughter’s health.
She also suffers from two kidney conditions -pyelonephritis and pyelocystitis – making her more prone to illness in cold weather.
Too risky
But the single mum couldn’t find a hospital to safely operate on her daughter because Virsaviya’s blood pressure was too high, making a procedure too risky.
“She can’t get it because of her high blood pressure and pulmonary arteries. So if it goes down, if she will feel better, they’re going to check her in two years,” Dari said.
Two years on, the incredible little girl appears to be doing well. It even seems that she has started Second Grade at school.
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“My heart is right here”
Virsaviya has spoken about her condition and her love for her mum.
“My heart is right here. It’s outside of my chest and I really love my mum, she’s always touching my heart because she likes it,” she said.
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There may be hope on the horizon
Dari raised more than $88,000 to help with her daughter’s medical costs.
Dari says there is hope that Virsaviya can have surgery if she continues take her medicines and her blood pressure improves.
But in the meantime, it seems that mother and daughter are finding joy in even the smallest things, like a giggle and a heartbeat.
(Video Included)
TRAGIC: Two Muskogee Women Get 20 Years For Beating Child So Severely He Had Two Strokes
Rachel Jean Stevens, 28 (left) and Kayla Ann Jones, 25 (right)
Two Muskogee women have been sentenced to 20 years in prison after prosecutors say they beat a 5-year-old so severely that he suffered two strokes while hospitalized.
Rachel Jean Stevens, 29, and Kayla Ann Jones, 26, pleaded no contest on Friday to child abuse and child neglect charges, according to court records. A Muskogee County judge sentenced the Stevens and Jones, who were set to start trial on Monday, to 20 years in prison in accordance with a plea agreement.
According to a previous story, investigators determined that the boy had been locked in a room and bound with duct tape over his eyes. The boy told investigators in December 2015 that his mother, Stevens, and Stevens’ girlfriend, Jones, had beaten him with a belt.
Jones
Stevens
Police alleged in a probable cause affidavit that Stevens hit the boy’s hand with a hammer and that Jones “kicked him so hard in the groin that it made him bleed.”
Officers responded to St. John Medical Center in Tulsa on Dec. 8 after the boy was transferred there from a Muskogee clinic because of lesions on his face and seizures he was having. The boy was then airlifted to OU Medical Center in Oklahoma City, where staff determined he was malnourished and had multiple broken bones at different stages of healing.
Muskogee County District Attorney Orvil Loge said Wednesday the plea agreement, which includes a stipulation ordering neither woman to contact the child throughout their incarceration, was in the boy’s best interest.
“It was a conclusion that was carefully discussed with the family,” he said of the agreement, calling the matter a “very serious case.”
“The nature of the injuries were very severe, but the child is doing very well now in a loving home. He is a completely different child now than when this (case) first came in. He received the most wonderful care and is in a great home right now, and I feel confident that he is going to be OK.”
Jones and Stevens were scheduled for a judicial review in September 2018, at which time their case will be be reviewed by a judge, according to court records. If granted, the sentence for Stevens and Jones could be modified.